Our current protocol is as follows: GFCF diet, polyzymes, probiotics, Super B5, Immupro, Glutathione (lotion), juva cleanse, Saccharomyces Boulardii, and we will soon be giving him Nystatin. This may seem incredibly overwhelming to any parent reading this, but with the help of a DAN! doctor, it is actually quite doable. Especially if your a parent like me who is willing to do whatever it takes to get a hug from their child. Guess what......I got one. So worth it!
Wednesday, May 25, 2011
I got a hug!
I am so encouraged to see my Aidan continuing to improve! Today was such an amazing day because Aidan gave me a hug! We were sitting in the play room and he put his arms around my neck and hugged me! Danielle and I just looked at each other in awe. I said "did you see that?" and she said "I sure did. And that was a deliberate hug!". I think I was in shock. Then after Danielle left, he hugged me again!
Sunday, May 22, 2011
Informative Week!
Two very interesting moments happen this last week. A family friend mentioned to me that her neighbor had a son who recovered from autism. She gave me the mother's number and I called her. This women had a wealth of knowledge and I felt like I was talking to Jenny McCarthy herself. We talked for an hour and a half and I could have kept going. I learned so many wise things from this wonderful lady and the best part of the conversation was when we figured out our sons both have the same DAN! doctor! I should mention again that her son is now top of his class and those that know him would never guess where he was at a few years ago. How encouraging is that? Just proof to me again that God is paving the road for us in Aidan's recovery. She mentioned to me that her son was given a prescription for nystatin that removes the yeast from the intestines. After he was given this, he showed major improvements. Dr. Centers just prescribed this for Aidan! I am looking forward to seeing even more improvement in Aidan once we remove the yeast overload from his body.
The other interesting moment this week was when I took Liam to his 9 month doctor appointment. This must be a new protocol that they do for 9 month olds.......an iron test. Basically they prick their big toe, get some blood on a strip, stick it in a machine that they have right there in the office, then pop back in a minute later and tell you your child's hemoglobin score. It literally took under 3 minutes to do this. I thought to myself......."how easily they could do this same test on a newborn to test their glutathione levels". Glutathione is a natural antioxidant that the body produces. Children with autism tend to have a lower amount of this antioxidant in their bodies. If we test for this and the child's levels are low, then we would think twice about injecting them with so many vaccinations. The child's immune system may not be able to handle it. How easily we could test for this. Just as easily as the hemoglobin test. If this kind of test could help us avoid all these kids with ASD, then why not? Something tells me it has to do with money. Its all about money, and as of right now the pharmaceutical companies are making a hell of a lot of money off vaccines! God forbid we try to take any away!
Sunday, May 15, 2011
Prayers for Aidan
I got a phone call from my dear friend Joni last week. Joni is my college room mate who is truly a kindred spirit. Her and I have always been on the same page in every aspect of our lives. It always seems that we go through difficult moments at the exact same time in our lives. Although they are different struggles, we are able to find strength in one other. I wish so badly she lived closer because I love her dearly. Anyway, she called me in the morning and her voice sounded excited and eager. "Hi Bina" she said with her southern accent. She begins to tell me that her mother woke up in the middle of the night last night with Aidan on her heart. If anyone knows Joni's mom, this woman has a direct link to God. She is a saint. She felt that God led her to some scripture about Aidan and she wanted Joni to share them with me. Joni did. I read them right away. I love that the message of all I read was "hope". Hope in knowing that God will heal Aidan. This is something that I really needed to be reminded of. Once again an example of how God always brings my dear Joni in my life to remind me of what's important. I also think it is so amazing that Joni's mom, who has never even met Aidan, cares so much that the thought of him wakes her in the night. What a special woman she is.
Tuesday, May 10, 2011
We don't belong here!
Tonight was a difficult night for me. We went over for a play date at Eva's and Aidan was consumed in playing in the dirt. Yes boys love dirt. Yet this was beyond the actions of a typical boy. He was consumed with the dirt and laying it on each leaf of the plant. This consuming activity drew him away from interacting with his cousin as well as playing with any other fun activities. I repeatedly tried my RDI tactics to pull him away from it with no success. Frustrated we went inside. I guess the tipping point of the night was after bath. He refused to let me put his jammies on. He would not stop trying to get me to turn the fan on and off, on and off, on and off. I lost it! Enough already! Why are these static actions consuming my son? Why does this take precedent over interacting with his mother, cousin, aunt, and family? Why? Why? Why? Yes I know why
Still, I look at my niece and long for Aidan to be like her. I wish she was my own child and then I have this overwhelming amount of guilt for feeling that way. I don't belong here. This is not how my life was meant to be. Then I realize Aidan doesn't belong here either. He is the one who is truly trapped! We have both been thrown into a world we don't belong in. The world of autism.
Monday, May 9, 2011
Mother's Day 2011
Mother's Day 2011
This was my first mother's day with my two boys and it was wonderful! I am so thankful to have Aidan and Liam and love being their mother. This last year has been my most challenging as a mother. It has molded me into a different person than I was before. I feel that I have a new gratefulness and appreciation for all that life brings me. When I feel despair, I remind myself that things could be much worse, and there are so many people out there suffering much more than I am. If those people have the incredible strength to get through their hardships, you bet I can as well. And with that comes the steadfast determination that I have never felt till now.
That being said, this was a very emotional mother's day for me. My gifts made it even more emotional. Craig gave me a beautiful engraved watch from Aidan and Liam.
Eva presented me with a necklace that was engraved with "mother warrior" "Aidan 2011". Of course that sent me into a flood of tears, in which sent all the mothers at the table into a flood of tears as well. It was a beautiful moment. One I will never forget.
Happy Mother's Day.
Saturday, May 7, 2011
It's working!
Aidan is continuing to improve daily. He now says "doggy" and "hot". He also is able to comprehend much more than he previously could. We went to the P.h.d child psychiatrist for an evaluation. She felt that Aidan was at risk for autism, but she was very encouraged by all the good signs she saw as well. I left there feeling encouraged and even more determined to keep moving forward with RDI, the diet, and DAN! protocol. In her words "what your doing is working".
Test Results!
The urine results for Aidan came in and Wow! His urine showed he is highly acidic with a yeast overgrowth in his intestines. He also has several toxic metals in his body! I held the results in disbelief. This is it. The proof was in my hands. My child is like all those children I read about. He has fallen victim to the immunizations, toxins, etc. He is sick and we have to get him better. He can recover!!! Those test results removed any doubt I had that this was not something we can cure. We are going to recover Aidan. I am more determined than ever.
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